First conducted in 1997 by the National Alliance for Caregiving and AARP, the Caregiving in the US studies are widely regarded as one of the most authoritative resources available to describe the American caregiver. With previous studies conducted in 2004 and 2009, each addition provides new information on demographics and other factors affecting caregiving. The 2015 update, a renewed partnership between the Alliance and AARP, will be the most detailed examination of this critical area of American life to date. Special focus will be given to reaching a broad racially and ethnically diverse population sample.
This section also includes broad research on family caregiving, such as our work on communicating with caregivers in 2002. Please select the tabs below for more information.
Research Reports on Caregiving in the U.S. and General Caregiving
Caregiving in the U.S. 2015
Caregiving in the U.S. 2015 is a joint research study between the National Alliance for Caregiving and AARP providing new insights into higher-hour caregivers (at least 21 hours of care a week), caregivers ages 75 and older, multicultural caregivers (including African American/black, Hispanic/Latino, and Asian American/Pacific Islander populations), and the challenges facing caregivers in the workplace.
The study was made possible through generous sponsorship from AARP, Archstone Foundation, Eli Lilly, Home Instead Senior Care, MetLife Foundation, Pfizer, UnitedHealthcare, and the Family Support Research and Training Center in conjunction with the University of Illinois at Chicago.
- Press Release – “New study identifies challenges for family caregivers, caregiving solutions needed”
- Caregiving in the U.S. 2015 – Executive Summary (PDF)
- Caregiving in the U.S. 2015 – Final Report (PDF)
- Special Report: Caregivers of Persons Age 18 – 49 (PDF)
- Special Report: Caregivers of Persons Age 50 and Older (PDF)
- Caregiving in the US 2015 – Appendix A Questionnaires (PDF)
- Caregiving in the US 2015 – Appendix B Detailed Methodology (PDF)
- Caregiver Profile: The “Typical” Caregiver (PDF)
- Caregiver Profile: The Higher-Hour Caregiver (PDF)
- Caregiver Profile: Caregivers Age 75+ (PDF)
- Caregiver Profile: Millennials (Age 18 – 34) (PDF)
- Caregiver Profile: African American/Black Caregivers (PDF)
- Caregiver Profile: Hispanic/Latino Caregivers (PDF)
- Caregiver Profile: Asian American Pacific Islander Caregivers (PDF)
- Caregiver Profile: Men as Caregivers (PDF)
Caregiving in the US 2015 – Public Use Data File (SPSS – Download from Dropbox)
Please note that any work done with this data should be jointly attributed to the National Alliance for Caregiving and AARP. This data file includes data on caregivers age 75 and older, and an oversample of African American/Black American, Hispanic/Latino, and Asian American Pacific Islander caregivers. See the Overview of Methodology for more details on data collection.
For background on the project, you can download the presentation from Alliance CEO Gail Hunt and AARP’s Susan Reinhard from the 2015 American Society on Aging Meeting by clicking here.
Caregiving in the U.S. 2009
Caregiving in the U.S., which was funded by MetLife Foundation and conducted for the National Alliance for Caregiving in collaboration with AARP by Greenwald & Associates, is the result of interviews with 1,480 caregivers chosen at random. The study was designed to replicate similar studies conducted in 2004 and 1997 and includes, for the first time, a sampling of those caring for children as well as those caring for adults over the age of 18.
- Caregiving in the U.S. Executive Summary (PDF)
- Full Report (PDF)
- Companion Report of Caregivers for Adults 50+ (PDF)
- Companion Report of Caregivers for Children with Special Needs (PDF)
- Companion Report of Caregivers for Young Adults Age 18-49 (PDF)
- Companion Report of Ethnicity of Caregivers for Adults 50+ (PDF)
- Alzheimer’s Caregiving in the US (2009)
- Press Release (PDF)
- Appendix A: Full Questionnaire (PDF)
- Appendix B: Detailed Methodology (PDF)
- Data Set (SPSS), Banner Tabs (SPSS), Questionnaires (MS Word) – Download from Dropbox
Caregiving in the U.S. 2004
Caregiving in the U.S.: Findings From the National Caregiver Survey (2004)
Communicating with Family Caregivers 2002
Findings on Communicating with Family Caregivers (2002) (PDF)
Caregiving in the U.S. 1997