Rare disease families front and center in upcoming caregiving study

Rare disease families front and center in upcoming caregiving study

PR Web (National Alliance for Caregiving) | August 31, 2017

“To study the impact of rare disease on family caregivers, the National Alliance for Caregiving, in partnership with rare disease patient advocacy organization, Global Genes, is launching a “first-of-its-kind” national snapshot of rare disease caregivers. This fall, the two groups plan to release a national survey aimed at collecting feedback from over 1,000 family caregivers of children and adults with rare diseases.” 

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