Caregiving Blog

Rare disease families front and center in upcoming caregiving study

PR Web (National Alliance for Caregiving) | August 31, 2017

“To study the impact of rare disease on family caregivers, the National Alliance for Caregiving, in partnership with rare disease patient advocacy organization, Global Genes, is launching a “first-of-its-kind” national snapshot of rare disease caregivers. This fall, the two groups plan to release a national survey aimed at collecting feedback from over 1,000 family caregivers of children and adults with rare diseases.” 


Dementia dramatically increases family expenses

Reuters | August 25, 2017

“The average lifetime cost of care after a diagnosis of dementia in the U.S. is about $322,000, and families pay about 70% of that, new research suggests. The cost of care is $185,000 higher for someone with dementia than for someone without it, the study authors wrote in the Journal of the American Geriatrics Society, online August 17.”

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How HIPAA regulations can encourage caregiver, family engagement

Patient EngagementHIT | August 28, 2017

“Being a patient does not have to be a solo experience. Many patients benefit from caregiver and family engagement – and many providers encourage collaborative decision-making. While HIPAA regulations exist to secure the rights of patients to keep their health information private, the law can also enable approved personal representatives to help individuals receive the best possible care.” 

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Robo-caregiving & why you might delegate your loved ones to a robot

Big Think | August 28, 2017

“Robotics is already changing how we live, shop, invest, travel, and soon, robo-caregivers will transform how we provide care. Advances in artificial intelligence will deliver extraordinarily innovative services in support of our loved ones. However, the use of robots to care for our children, elderly and disabled will also give rise to some very human questions.” 

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Burdens of spousal caregiving alleviated by appreciation, study finds

Science Daily | August 28, 2017

“When discussing spousal care, the draining demands of caregiving and the uplifting effects of helping stand in apparent contrast to one another. But recent research shows that the time caregivers spend actively helping a loved one can improve the caregiver’s sense of well-being — and now, Poulin, an expert in empathy, human generosity and stress, is part of a research team that has published a study exploring why that’s the case.”

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